

Karen's research project aimed to address this knowledge gap. The findings from the research will be reported to policy forums, professional bodies and patient groups, as well as to other sociologists working in this field. This information sheet explains two of the ways in which you could contribute to this research; a third way of participating - focus group discussions arranged through regional support groups.
Many of our members volunteers to meet with Karen and she went on to complete this important piece of work. What follows is a summary report from Karen that she has agreed for us to place on the website.
We would like to thank Karen for this work and look forward to seeing the development of future areas of work.
Please click here to read the full article